This week marked National Day of Cystic Fibrosis in the Canary Islands, and patients and health specialists have been demanding the sale of a medically approved drug by the European Medicines Agency that has been available for over two years.
It is claimed that this new drug for cystic fibrosis could improve the quality of life and life expectancy for those suffering with this disease. Cystic fibrosis is reported to be one of the most frequent serious genetic diseases, whose incidence is around 1 in 5,000 births.
In the Canary Islands, there are more than 175 people affected by this disease, and one of these individuals is Alvaro Suarez Rodriguez, who was diagnosed with this disease at the age of four weeks.
Since his diagnosis, Alvaro has had to fight this disease with a healthy diet, physiotherapy and physical exercise. Alvaro and his parents have learned to live with a disease that at the moment has no cure. They are now asking that the new drug approved by the European Medicines Agency and already available in many European countries, now be marketed and sold in Spain, so that Alvaro can be given greater hope.
You can find this and other news stories from the Canary Islands and Spain in the free, online 'News from the Canary Islands':
Remember to enter your email address for your FREE weekly online copy of 'News from the Canary Islands'
Keep up to date by joining our Facebook page: @newsfromthecanaryislands